at work, thinking of my kid

Dec 14, 2015 8:12 AM

kitten86er

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My son was born at 25 weeks gestation for no apparent reason. He weighed 1 pound, 12 oz and had a disease called Necrotizing Enterocolitis (NEC). His intestines were dying. He had his first surgery at 2 days old. They cut open his stomach to try and fix him.

Meanwhile, he couldn't eat. He was TPN dependent. In the US, TPN is soy based and very hard on the liver. He was diagnosed with liver failure, rickets, and didn't have a long life expectancy.

This kid had so many surgeries, but always had a smile.

He was always driving the medical staff crazy.

They didn't expect him to walk, talk, eat, or learn. He's had 32 surgeries everywhere from his eyes to his knees. He's had complete cardiac arrest more times than I care to think about.

He is now 4. He cannot speak as a normal 4 y/o, but he comprehends everything.

He is such a smart boy and I couldn't be prouder of him.

Cat tax, this is Oliver.

Your son is beautiful. May he prove everyone wrong.

10 years ago | Likes 91 Dislikes 1

My daughter was born at 26 weeks. It has been a long road. Still another month of NICU to go. Glad your boy made it.

10 years ago | Likes 2 Dislikes 0

I'm glad your son turned out okay. My advisor for my chem major just went into labor last week, wasn't due until March. It's a scary thing.

10 years ago | Likes 2 Dislikes 0

Children who grow up with challenges become the strongest adults.

10 years ago | Likes 3 Dislikes 0

Adorable baby boy you have. That kitten needs a bow tie

10 years ago | Likes 2 Dislikes 0

Yay for your little fighter! And that cute ass cat...I love kids and cats

10 years ago | Likes 2 Dislikes 0

This needed no cat tax.

10 years ago | Likes 2 Dislikes 0

I had rickets as a child and grew up just fine so I know he'll be able to get through this too!

10 years ago | Likes 2 Dislikes 0

What a fighter, OP! Have a merry [your choice of holiday here]! :D

10 years ago | Likes 3 Dislikes 0

Indeed. Merry holiday to you, as well.

10 years ago | Likes 2 Dislikes 0

Does he have a tablet to use for communication? Those things can be wonders for some kids.

10 years ago | Likes 9 Dislikes 0

He does! In fact our local Elks bought him one. It's a bit beat up now, but it keeps turning on, so we're gonna keep using it.

10 years ago | Likes 7 Dislikes 0

Thought this was going to be sad, so glad I was wrong!

10 years ago | Likes 105 Dislikes 1

I still cried :(

10 years ago | Likes 6 Dislikes 0

Aww I'm sorry. No more cutting onions today.

10 years ago | Likes 2 Dislikes 0

It's great to hear the little guy is doing well. I hope he's fine the rest of his life as he's been through enough. Just as hard on you too.

10 years ago | Likes 2 Dislikes 0

And here i am complaining about a common cold.. Kid's tougher than me and i've been in the swedish marine corps.

10 years ago | Likes 29 Dislikes 1

That's pretty damned tough, too.

10 years ago | Likes 7 Dislikes 0

Oh dear, you named your orange kitten Oliver. I did the same 11+ years ago. It was a mistake. He IS a Garfield. Hope you have better luck ;P

10 years ago | Likes 4 Dislikes 0

I wanted to name him Soul (because gingers don't have one). My husband (a ginger) was offended. So, he picked Oliver.

10 years ago | Likes 2 Dislikes 0

haha!

10 years ago | Likes 2 Dislikes 0

hooray! life!

10 years ago | Likes 7 Dislikes 0

That smile in the third picture made me smile and I don't smile much.

10 years ago | Likes 5 Dislikes 0

Rooting for this kid, hope he beats all of the doctors expectations!

10 years ago | Likes 4 Dislikes 0

So far, so good! They never expected him to get this far.

10 years ago | Likes 2 Dislikes 0

When you kept saying was I was ready for a waterworks ending. Then I saw the last picture and I was relieved. Glad he's doing good!

10 years ago | Likes 3 Dislikes 0

Thank you. He was touch and go there for awhile, but he's doing amazing. He's such a good kid.

10 years ago | Likes 1 Dislikes 0

I work at a hospital and I shudder to know what some of the medical bills of extended stay / frequent flyer kids like this one are like

10 years ago | Likes 2 Dislikes 0

Luckily insurance and the hospital has charity services. We lucked out massively. We still pay his med bills but it could be worse...

10 years ago | Likes 3 Dislikes 0

Damn that's awesome, glad to hear you guys found solutions to the financial aspect to treating all this!

10 years ago | Likes 1 Dislikes 0

You didn't need the cat tax.

10 years ago | Likes 2 Dislikes 0

We preemies are strong. He is so handsome :D. I was 20 weeks early. 1Lbs 8oz. heart surgery at 3 days old, 29 years later.

10 years ago | Likes 13 Dislikes 2

I was suppose to be born end of December, was born September 22nd instead (due date was December 27th), I am 29 now :D

10 years ago | Likes 2 Dislikes 0

I so love hearing success stories from past preemies. It sometimes is the only thing keeping me from worrying myself to death.

10 years ago | Likes 10 Dislikes 0

Had my daughter at 25 weeks. She's been in the hospital for the 1st 4 months of her life. Still fighting. I also love to hear success storie

10 years ago | Likes 2 Dislikes 0

Keep strong mom and dad, What MuffinstuffsnButternuts said. Wait until he starts driving and brings home a girlfriend.

10 years ago | Likes 3 Dislikes 0

Ugh... I don't wanna think about girlfriends!

10 years ago | Likes 2 Dislikes 0

Me either, my eldest is 8 and told me once he had a GF.

10 years ago | Likes 2 Dislikes 0

Just hope the best for your son.

10 years ago | Likes 2 Dislikes 0

He is a very dapper lad.

10 years ago | Likes 2 Dislikes 0

This was beautiful

10 years ago | Likes 2 Dislikes 0

If you're American, this must have been financially crippling, no? He's a handsome little guy...

10 years ago | Likes 13 Dislikes 1

Yeah... Medical bills for liiiiife. But, not as bad as it could of been. Before insurance, he had over $5 million USD. He's well worth it.

10 years ago | Likes 17 Dislikes 0

Worth it every time he smiles... but as a Canadian i can't even begin to imagine...

10 years ago | Likes 3 Dislikes 0

Have you done fundraisers?

10 years ago | Likes 4 Dislikes 1

I considered out, but no.

10 years ago | Likes 1 Dislikes 0

I considered out, but no.

10 years ago | Likes 1 Dislikes 0

Well, we are here for you if you'd like to do that.

10 years ago | Likes 2 Dislikes 0

Thank you. I feel awkward about asking for money.

10 years ago | Likes 1 Dislikes 0

My daughter had delayed speech due to seizures. It wasn't until she was three that she asked me if I was the one who panted a painting on(2)

10 years ago | Likes 2 Dislikes 0

Cutie with a bow tie +1!

10 years ago | Likes 12 Dislikes 0

He was Dr Who that day :p

10 years ago | Likes 6 Dislikes 0

I was wondering if he was supposed to look like Matt Smith. The only thing he lacked was a fez. Please buy him a fez, fezzes are cool now :D

10 years ago | Likes 3 Dislikes 0

I'll try. Most of his clothes are second hand and fezes are hard to find second hand :p

10 years ago | Likes 2 Dislikes 0

He is adorable! :)

10 years ago | Likes 3 Dislikes 0

my best friend was born at 24 weeks, when she got out the hospital her mom took her to a wrestling 1/?

10 years ago | Likes 2 Dislikes 0

event, WWF(at the time) Ric Flair thought she was a doll and was so taken by the cute tiny baby he 2/3

10 years ago | Likes 2 Dislikes 0

basically kidnapped her and took her all through the locker rooms.

10 years ago | Likes 2 Dislikes 0

1 The little boy I've nannied for 4 years was a micro preemie with a similar medical situation. He was very delayed at 4 y/o as well. He

10 years ago | Likes 23 Dislikes 0

2 just turned 7 and with the help of weekly occupation and speech therapy has met if not exceeded every developmental milestone. Posting in

10 years ago | Likes 20 Dislikes 0

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10 years ago (deleted Feb 11, 2016 6:14 AM) | Likes 0 Dislikes 0

L is in speech, occupational, and physical therapies. I bet he catches up, someday. Even if he doesn't, I don't care. He's already amazing.

10 years ago | Likes 19 Dislikes 0

My boyfriend's nephews were both super premature - Sully talks better than I did at his age (2) and Bo has improved leaps and bounds 1/2

10 years ago | Likes 2 Dislikes 0

since I first met him 2 years ago - he couldn't even make all the sounds to sound out my name, now he's forming full sentences. 2/3

10 years ago | Likes 2 Dislikes 0

So I think you're right on that one - I bet he will catch up. And even if he doesn't, he'll still be just peachy :)

10 years ago | Likes 2 Dislikes 0

I'm so glad for you. Thanks for posting! My mrs just went to the hospital with spotting at 25 weeks, looks like we will be ok this time

10 years ago | Likes 351 Dislikes 1

For my wife, they told her to quit doing "anything" physical including picking up around the house. Keep her off of her feet for a while.

10 years ago | Likes 4 Dislikes 0

Yeah I can't emphasise how much you should do this. Every extra week is months less time catching back up.

10 years ago | Likes 1 Dislikes 0

I spotted off and on my entire pregnancy... Put on bed rest. He's 2 now and healthy as an ox.

10 years ago | Likes 2 Dislikes 0

I had spotting each time with my 4 at 25 weeks. Everything was fine each time so good luck to you both.

10 years ago | Likes 10 Dislikes 0

Mine were born at 29w. If I had a do over, I would have done less...it's MUCH more important that she rest, so offer to rub her feet.

10 years ago | Likes 2 Dislikes 0

My son was a 25 weeker. 2lbs 1oz. He just turned 14, straight As on his last report card and doesn't know he's getting Fallout 4 for xmas.

10 years ago | Likes 27 Dislikes 0

Currently at 23 weeks and paranoid! This gives me comfort. My coworker just had an early miscarriage and it kills me to imagine :(

10 years ago | Likes 2 Dislikes 0

I was born at 24 weeks.Lungs weren't developed properly,doctors said I wouldn't make it through the night.Im 26 now and healthy

10 years ago | Likes 5 Dislikes 0

I spotted a couple times before L was born. They said, "spotting is normal." Yeah... Evidently not.

10 years ago | Likes 99 Dislikes 1

I guess what I'm saying is, go with your gut and advocate. I wish I did.

10 years ago | Likes 68 Dislikes 1

My friend was told the same thing. No heartbeat at her last appt before she was suppose to get induced. :( :( :( :( :(

10 years ago | Likes 1 Dislikes 0

That's terrible. I'm so sorry.

10 years ago | Likes 2 Dislikes 0

It happened 9 years ago but she is still deeply missed by a lot of people.

10 years ago | Likes 2 Dislikes 0

Time to guess the L name! Leroy, La-a, Lucas, Lou Ferigno, Lavion, Luke Skywalker, Lenny, Leopold, Labamba, Luthor, Laffy taffy, Linda, Lou.

10 years ago | Likes 12 Dislikes 1

Here's a dead give-a-way hint: we named him after one of Wolverine's names

10 years ago | Likes 10 Dislikes 0

Oh my gosh... I'm so glad your son is doing okay! As someone who wants to have kids someday, I can't even imagine...

10 years ago | Likes 43 Dislikes 1

You never know how strong you can be until you have no choice.

10 years ago | Likes 23 Dislikes 1

Bless you, OP.

10 years ago | Likes 3 Dislikes 0

You had a choice, and you didn't even consider it. Good for you.

10 years ago | Likes 5 Dislikes 0

The first time he went into cardiac arrest was when the RNs decided I needed the DNAR talk... As he was coding. I literally walked past and

10 years ago | Likes 5 Dislikes 1

started CPR on him myself.

10 years ago | Likes 5 Dislikes 1

Jesus fuck, just stumbled across this, hope everything is still good

5 years ago | Likes 1 Dislikes 0

Damn OP. Mind if I quote you on that? Thats the best thing Ive heard in a while.

10 years ago | Likes 5 Dislikes 0

*^.^* sure

10 years ago | Likes 4 Dislikes 0

Pst... quote it as Bob Marley. ;)

10 years ago | Likes 1 Dislikes 0

Plz, let me dream.

10 years ago | Likes 1 Dislikes 0

Was it Bob Marley? It was written on his incubator by my mom and I didn't know if she thought of it ought found it.

10 years ago | Likes 1 Dislikes 0

Was it Bob Marley? It was written on his incubator by my mom and I didn't know if she thought of it or found it.

10 years ago | Likes 1 Dislikes 0