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Almost everyone knows Robin Williams committed suicide. Very few know why. He had been diagnosed with Lewy Body Dementia. The disease is basically a combination of Alzheimers and Parkinson's. There is no cure, no predicting it, no real treatment, and is 100% terminal.
Robin Williams didn't commit suicide, he was saving himself and his family from months of misery and sadness. "Robin's Wish" details his struggle and hopefully helps bring light to this mystery disease that is relatively unknown.
After my aunt and uncle passed away at 64 & 68, my dad said if he was diagnosed with it, he'd ski off a cliff. It's brutal to watch in person: the anxiety, the panic, the confusion, the shaking, the insomnia, the restlessness, and eventually the denial and complete bodily/brain shutdown.
My dad just started showing symptoms in late January, right around his 71st birthday. He was still a practicing land & water attorney, he skied over 20 days last year before COVID lockdowns (almost all double-black mogul runs), he worked out a lot, he and my mother had trips to Italy and Alaska planned... and it all came crashing down within weeks. His case was one of the fastest doctors had ever seen, which was a blessing in the long run since I've already been through this twice and seen the brutality.
I don't need sympathy but want to use my dad and Robin Williams' cases to bring attention to a disease that is not widely known and even less understood. I also want to reiterate that mental disease/dementia is an actual disease, not a "funk" or "state of mind". Give your family a hug and tell them you love them every chance you get. Thanks, imgur community - you've given me some much-needed smiles while sitting in the hospital for the last 2 weeks.
TL:DR. Robin Williams committed suicide because he had Lewy Body Dementia - it's terminal. My father would have done the same. 3rd go-round of this in my family. F--k mental disease.
guiltyalias
I am very sorry OP.
Laneskydoodlethe2nd
Jesus man. I hope it's not genetic and you and your sis live long healthy lives. Sorry bout your daddio too.
hugh705
Dad died of Pick's disease, which is similar. It can run in families. I plan to check out too if it comes to it.
RemiRixJones
Don't forget to take care of yourself, @OP. I will keep you and your family in my prayers tonight, if you're cool with that. <3
ClickityDoucheBabaGanoosh
That’s horrible op. Sorry. Hope no one else gets it. My father just died from dementia. Deterioration of the mind takes away who you are.
digibard
My father had lewy body. I know how you feel man.
matheuwright2
Thank you for sharing @OP!
FlonkyTedGruber
Add hashtags for search
glrom31415
I too have been diagnosed with LBD. It is scary to know the future, especially when you can’t do much about it. Go to https://www.lbda.org.
NursePaulFlowers
Worth the read
IWantedOneOfThoseLongUsernamesTooSoIGotOne
I... well... if you feel like you need to self-euthanize (when you are 70+, I should emphasize) man... go ahead. Mental pain is still pain.
hungrybookworm
So sorry :( I think Estelle Getty also died from this.
Johns415
Stay strong! God bless!
Brain360
My sister suffered from Lewy Body for nearly 20 years before passing away last year. It is a gut-wrenching process. My sympathies to you.
isenette
this is what my dad has. just counting down the days now and enjoying what time we have left.
NursePaulFlowers
Thank you for informing people.
thoushaltnotpass
Prepare an exit plan in case euthanasia/assisted death is not an option in your country.
JackIsLacking
My grandma was diagnosed with that and died from it 13 years ago. I'm sorry you have to go through this.
TheSexInstructor
My grandfather died 5 years ago from it. He was one of the smartest most handy men I knew, it destroyed him, it was the hardest thing I have
TheSexInstructor
Ever gone through. At one point towards the end, he confused me for his father and it broke my heart how lost he was, I miss him everyday
Captainkeegan
I lost my dad to this a few years ago - took a long time to be okay with the relief I felt when he passed. Stay strong.
WhatsTheMatterWithTheseScissors
My grandfather passed from this. It sucks, and I'm sorry.
JustDriftingAboutTheInterWebs
Yikes, in so sorry @op
AnxiaTeaDD
I lost my dad to suicide and my stepdad who I loved just as much to terminal cancer. My heart goes out to you and your family. All I can 1/
AnxiaTeaDD
2/is just be there for each other, love each other unconditionally through the darkness. I’m just so sorry friend.
notthatkaren
FYI People do not "commit suicide." It is not a crime. Stigma is rampant against people with mental illness. 1/
notthatkaren
Word choice matters a great deal. "Died by suicide." or "Took their own life." are less stigmatizing.
eromitlab
My dad had Parkinson's and was never diagnosed with LBD, but his symptoms fit it. If it happens to me... fuck it, I had a good run.
Ralleharen
My grandfather has it. He's in a retirement home. Sits in a wheel chair and can't do anything. He's having a hard time finding words. 1/
Ralleharen
2/ But he seems to understand what you are talking about. He is close to 70.
ChronicEd
I have a fear similar to this as well, and I really feel my mind slipping. I seem to be having the same weird actions that my father had ->
ChronicEd
started showing at my age. O_o...Best of luck to you all.
ColoradoCattleCo
I hear ya... but I also think we are hypersensitive to the topic & every little thing that comes up we want to attribute to it. Deep breaths
KonaVibes
Is there a test? Better to know than live in fear of what if.
GreatOdinsTaint
If you're concerned go see a neurologist and neuropsychologist. One for the medical workup and the other for cognitive testing.
HeadsAndShouldersPeasAndCorms
Sorry, @OP. My state in Australia is currently debating a Voluntary Assisted Dying (VAD) Bill, and my god I hope it gets through.
lovethecapybara
Is Holly Warland from your state and helping with the battle for VAD? I really like her perspective and think it should be heard.
HeadsAndShouldersPeasAndCorms
No but I love her perspective as well. So much respect for her.
Forscalebananas
Well damn. Robins death makes sense now
awindingland
Highly recommend watching Robins Wish if you want to understand more. It's like a documentary/ life tribute, it's quite amazing.
IamNotAshamed
Just for the record, he has been diagnosed with this only after his death. He did not know that he had a terminal illness.
Forscalebananas
Oof
IamNotAshamed
https://n.neurology.org/content/87/13/1308
BaWitda
He'd been diagnosed with Parkinson's. The doctors were wrong, but only in the particulars. The prognosis was much the same.
BaWitda
Saying that for those who don't click through the link; I know you're aware.
AnalBaguette
I'm so sorry for the losses you've suffered from this, I hope you are okay. As for you and your sister, I would see if it's possible (1/2)
BananaForScaIe
This. All the love and care and everything I have, small as it is, I'm sending too.
AnalBaguette
to see if you might experience this in the future since it seems to run through the family. I would want to know as early as possible.
hugh705
I'm in a similar boat as OP, but to me it's not worth, could have the gene and never get it, could not have the gene and still die similarly
hugh705
It's better just to know it's a possibility and try not to ruminate over it, but if I knew I had the gene I'd NEVER stop worrying.
ColoradoCattleCo
Sis sent me some info on testing for "possible genetic markers" but I'll pretty much just assume it.
LegendaryGrumpyCat
But then you are giving up so early. Genetics can be funny. You guys might get skipped. Crossing my fingers for you guys.
Totallyscrewedinaustin
What about grandparents on either side? Any history there?
ColoradoCattleCo
One grandma with alzheimers but no lewy body dementia. Other side of family had my great-grandma live to 108!
Totallyscrewedinaustin
Maybe it's something like they were carriers that combined together gave their kids a greater chance for the illness?
tynansdtm
My half-brother's dad died of Huntington's. That means my brother has a 50% of having it also. He's declined to get tested but has also 1/
tynansdtm
Decided to never have kids. I don't blame him. The disease tends to hit after 30 which is why it persists. My brother is my best friend 2/
tynansdtm
More info: https://www.alz.org/alzheimers-dementia/what-is-dementia/types-of-dementia/huntington-s-disease 3/
tynansdtm
tl:dr Personallity changes, OCD, loss of control of body, loss of ability to reason, plan, remember. No cure, no way to stop or slow it. 4/4
tidepool
My grandpa’s step dad’s father died of Huntington’s. He also decided to never have kids and pass it on. Then he met my great grandma who
tidepool
had 6 kids and whose husband had abandoned her, and fell in love with all of them. He never developed it, and lived to be 90 something, but